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Lanette

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OMG IT WORKED! [Nov. 26th, 2008|07:14 pm]
Lanette
[Current Mood |ecstaticecstatic]

In what can only be described as a "House" moment, minus the doctor putting me on ice or popping handfuls of vicoden, a few minutes after injection into L4, for the first time in YEARS, I have no burning pain down my leg. It took all I had not to cry on the table. carryaway was there to comfort me and see it all! It was just amazing!

I can last from one week to a few months. It can be repeated. They have options to make it permanent now too. It's too big. I can't believe it. I can't take it all in. I just have to wonder if it will still not hurt when I wake up tomorrow.

This could mean EVERYTHING for my future.
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[User Picture]From: chyara
2008-11-27 03:23 am (UTC)
OMG's!!! Congrats!!!!
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[User Picture]From: starrynytes4me
2008-11-27 03:49 am (UTC)
Thank you! I'm cautious, because we don't know how long it will last, but SO optimistic. The pain relief can get BETTER over the next 3 days.

My toe is still a mess, but only having one side of my body hurt is like a miracle, and the toe will be fine in a month.
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[User Picture]From: graphxgrrl
2008-11-27 03:36 am (UTC)
Oh, fingers crossed! You've been struggling with this pain as long as I've known you, I don't even have the words.
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[User Picture]From: starrynytes4me
2008-11-27 03:47 am (UTC)
I took my first step, and realized that for the last 5 years in the middle of each step of my right leg a get a stab in my buttcheek. Except today.

Today I walk with a smooth motion. In the middle of the step there is no quiet dialog of, "Keep moving, don't show the pain on your face, pretend there was no stabbing, ok, it hurts but KEEP the leg moving so you don't fall over."

OMG!!! If my toe wasn't healing I'd go dancing.

Tears. Just, I had to stop talking. I know that sometimes it only lasts a day, sometimes only a week, but even having a few minutes knowing that it IS possible for me to be out of pain without drugs. It IS a problem with L4 and we NOW know we can fix it!

It's just unreal. This isn't the end. This is the start of a new life with many options based on how this goes. It's the start of hard work, patience, and slowly weaning ON to nerve blocks and off of medication.

Do you realize that this means I can have a baby once I get this result to last? Even more beautiful, when I called to tell Craig, the first thing he asked was, "Do you realize what this means?" He was thinking the same thing. What a true holiday miracle for me. Even if it doesn't last. I am humbled, tearful, and absolutely thankful.
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[User Picture]From: tigrrlily
2008-11-27 03:59 am (UTC)
Oh I am so happy for you!

I do love new beginnings. :)
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[User Picture]From: starrynytes4me
2008-11-27 07:48 am (UTC)
Angela said it was a true "wow" moment to see the expression on my face just RELAX. Before I said anything she knew it worked.
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[User Picture]From: yruugrrl
2008-11-27 04:02 am (UTC)
That is fantastic. I'm so happy for you! This is thrilling -- you've been waiting and working on this for so long.
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[User Picture]From: starrynytes4me
2008-11-27 07:49 am (UTC)
This is a beginning. A chance to get a long term solution besides just more medication. I am SO excited to have the chance! I am trying not to get overexcited since this is just a temporary diagnosic measure. It lasts from 1 week up to about a month, so I have to keep that in mind, but still, the HOPE it offers is worth so much.
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[User Picture]From: prairieflower
2008-11-27 04:05 am (UTC)
What wonderful news! That's so fantastic! I hope it's long lasting and that you have relief for the longest time possible.

What kind of injection was it, out of curiosity?
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[User Picture]From: starrynytes4me
2008-11-27 04:08 am (UTC)
It was a transforminal spine injection of both steriod and numbing medication so help with inflamation.

After a new physical exam, the best pain specialist in the state had this theory that my L4 nerve on the right side might be inflamed. There is a virus that can impact nerves, and he feels like this could be the cause of my problem.

If his hypothesis is RIGHT, I'll most likely need another injection with stronger steriods in another month and then it will simply GO AWAY. Seriously. If it isn't his first guess, we still now know for a fact that nearly all of the pain goes away when I can't feel the right side of the nerve coming out of L4, so now a new world of treatments are available to me, and most importantly, without putting my body through hell, having bad side effects, or even making it so I am unable to have a baby! OH I AM SO EXCITED. Sorry. Craig and I are gonna go watch a movie now.
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[User Picture]From: meeshaphrenic
2008-11-27 04:57 am (UTC)
that's amazing, i'm so glad for you!
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[User Picture]From: starrynytes4me
2008-11-27 07:50 am (UTC)
While this injection was just a short term (1 week to a month) solution, it can be repeated AND it gives us a whole bunch of options to consider for solving the problem in 2009!
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[User Picture]From: thesugarmonster
2008-11-27 04:58 am (UTC)
This is so fucking incredible. I know how unbelievably huge HOPE is. To not feel pain; to feel sane; to feel NORMALCY for even just a few brief moments. It's like seeing the sun shining through after it's been pouring and black for years. I'm so excited for you.
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[User Picture]From: starrynytes4me
2008-11-27 07:51 am (UTC)
Angela (carryaway) said that she could tell it worked by my expression before I said anything. It was just AMAZING. It just "shut off". Granted, I now have a week to about a month of less pain if I'm normal with this injection, but you are right, it's the hope oflong term help that means so much.
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[User Picture]From: novemberstorms
2008-11-27 05:00 am (UTC)
I am so happy for you!!!
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[User Picture]From: starrynytes4me
2008-11-27 07:51 am (UTC)
Thank you! This is the breakthrough I've been hoping for!
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[User Picture]From: starrynytes4me
2008-11-27 07:52 am (UTC)
It could be the best Thanksgiving I've ever had!
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[User Picture]From: stephanieanne
2008-11-27 07:06 am (UTC)
I am speechless, I am just so happy for you. I know what this means to you, and I just...oh my God, you've been waiting for this moment for so long, and it's finally here!!!!
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[User Picture]From: starrynytes4me
2008-11-27 07:53 am (UTC)
I feel so blessed! I have much to be thankful for. I realize this is just temporary (as the results are unlikely to last more than a month at best), but it just is a huge turning point as far as me getting the right help to FIX this problem. It being the nerve itself means we CAN fix it. It being isolated to just ONE nerve? Priceless. He was ready to inject L5 too, but we didn't need to. The burning pain is all from the L4 right side nerve. That is just so amazing! They are going to be able to help me. Oops, I'm crying.
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[User Picture]From: puppie
2008-11-27 12:42 pm (UTC)
OMIGOD! OMIGOD! OMIGOD! Oh honey! I've got tears in my eyes! This is HUGE! *fingers crossed* for a month of relief instead of just a week. (Even if it's just a week, though, it's still some of the most amazingly awesome news I've ever heard.)
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[User Picture]From: starrynytes4me
2008-11-27 05:00 pm (UTC)
I woke up this morning,...no burning pain.

No matter if it is just for a week, it gives us AMAZING new options because we now know WHAT to treat. I need to find out how to shut up the nerve out of L4, and I have 2 doctors to safely help me do it. There is also a longer lasting, more difficult injection that you have to full anesthesia for that lasts 6 months. I'm not sure I understand all of the options yet, but he told me that the ball is in my court. I am to document when the nerve pain comes back and how quickly it gets back to pain level 7 on average over the next up to 2 months (there is a SLIGHT chance it could last for longer than a month, but it isn't likely). Once I know that, we talk about next steps with both doctors and decide how to treat it.

Here I was thinking that my only hope was going to be stronger pain killers. I SO WANT OFF of all pain killers and other medications if I can possibly function. That chance this year will just mean everything to me.
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[User Picture]From: random_girl
2008-11-27 05:51 pm (UTC)
Fingers crossed for you, prayers said. Also, YAY!
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[User Picture]From: starrynytes4me
2008-11-28 04:45 am (UTC)
Thank you! Even my Mom could tell upon seeing me just how relaxed my face is for once.
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[User Picture]From: starrynytes4me
2008-11-28 04:45 am (UTC)
Thank you! What an amazing day it's been all day. You can just SEE it in my face. Everyone in the family noticed. I've never ever looked this relaxed in years.
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[User Picture]From: dkstwin
2008-11-27 09:22 pm (UTC)
That is the best news ever! Congratulations Lanette.
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[User Picture]From: starrynytes4me
2008-11-28 04:44 am (UTC)
Thank you! I'm SO happy about it. :)
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[User Picture]From: druidesskat
2008-11-28 12:24 pm (UTC)
Not in a long time have I meant this with so much emotion:

YAY!!!!!!

So glad Lanette!
*hugs*
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[User Picture]From: starrynytes4me
2008-11-28 06:09 pm (UTC)
*hugs* Thank you! It still doesn't hurt.

This is a teeny bit scary, but it's been 3 days and while the burning pain isn't GONE, some of the feeling is coming back to the area so I am worried it is going to hurt. I think that's just the steroid working.
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