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#*)($*@#($_#$ [Aug. 2nd, 2008|04:07 am]
[Current Mood |frustratedfrustrated]

What kind of doctor gives you surgery that you wake up at 4am on a Saturday with uncontrollable muscle cramping and pain? And then decides you are "healing well" so don't need anything else for it? Even ON Medication it still hurts. This is the WORST SURGERY EVER INVENTED. And I had the "most extensive upper abdomen they have ever done out of 800 surgeries. Go me! My muscles are on strike.

That would be MY brilliant surgeon.


This surgery no more? Emergency escape hatch please. Do not know how to help myself. Took 1/2 a valium (1 had 1 left) and am waiting it out. Can't start taking pain killers this early in the day.

[User Picture]From: the_tatyana
2008-08-02 12:20 pm (UTC)
Well, it does seem like he did a fantastic job on you, surgically, and the cramping may be that the muscles are healing? However, his pain management is HORRID!!!! What is wrong with a surgeon who doesn't acknowledge a patient's pain???!!!
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[User Picture]From: starrynytes4me
2008-08-02 03:17 pm (UTC)
He thinks it's just me. He's all woowoo and prides himself and "how well his patients do" and they are better than everyone elses'. So if I need pain medication it means he did a bad job. I told him it still hurts and he said it is normal, and just stay down and do more activity "as tolerated". It's so frustrating. Maybe I should call him, but he just sees me as a "medication seeking patient" even though I told him before that I have a tolerance to this stuff and my pain is HARD to treat and I as afraid this was going to happen and wanted to make sure he understood and would take care of me.

He said, "Well, we will do the best we possibly can, but you need to know that there is no way to do this surgery without pain. It WILL hurt. We will use the very best treatment we have, but you have to keep in mind the pain is temporary and you will heal. It is a painful procedure and we simply can not make it painless, but we will be there with you every step of the way. If you have a problem, you give us a call and we will address it the very best we can."

My understanding of that was WAY different than what he meant. To me the "very best treatment" is listening to the patient. It's medication until the pain is better. It's sleeping through the night. To him it is "my treatment is the best. I give it to the patient, they comply. If complication arises, I treat that. If not, I don't deviate from MY plan."
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[User Picture]From: the_tatyana
2008-08-03 03:42 am (UTC)
He is full of crap. That's a very old fashioned approach. The latest findings show that if the patient is in less pain, he will be more active and will heal faster. Pain management, as you know, is a HUGE deal these days. If he won't give you pain meds, you need to go over his head 0 start with the surgical resident on call at the location where you had the surgery. Or go into the hospital emergency room and make a stink. Plastic surgeons tend to be very arrogant about their abilities - and he's clearly NOT hearing you.

BTW, have you tried pain med patches to control your chronic pain?
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[User Picture]From: starrynytes4me
2008-08-03 02:25 pm (UTC)
I wish I could. No I have not been able to get even 1 patch to try of pain meds.

I have lidocaine (numbing) patches, but they only help with muscle cramps and I have to be in pain level 9 for them to matter at all. THey help 1 pain level. More stable pain control would be HUGE for my quality of life.
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[User Picture]From: the_tatyana
2008-08-03 06:35 pm (UTC)
My cousin, who's a physical therapist, says that she has seen widespread use of pain med patches - narcotic, not lidocaine - for control of chronic pain, especially though pain management clinics/centers.
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[User Picture]From: crazyredhead888
2008-08-05 06:07 am (UTC)
The number of doctors I have encountered and read about who absolutely suck at pain management is unbelievable. My OB likes to ask me if I've tried Tylenol which pushed me very close to doing extreme violence on her.
When I was with James we encountered this all the time. Multiple doctors accused him of faking pain to get get meds. And this is the man who never even smoked pot as a teenager. He was disgusted by needing pain meds, but just wanted to not be in pain.
I'm sure someone else has mentioned this but I have been lousy about reading posts and comments...is there any way you can see another doctor about the pain specifically?
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[User Picture]From: anomalous_girl
2008-08-02 03:34 pm (UTC)
Ouch!!! So sorry!! Maybe I should send you another package? I am so sorry you are having to go through this!!
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[User Picture]From: starrynytes4me
2008-08-02 03:37 pm (UTC)
Tatyana's got me. :) I'm gonna go see the good Dr. K on Thursday. I only have to make it until then. That's it. It's not THAT far away.
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[User Picture]From: starrynytes4me
2008-08-02 03:50 pm (UTC)
You can seriously buy Ultram 100mg online. I've DONE it before with results. It's expensive, but works. Get a new doctor. This one is a douchbag. You need to get to the pain specialist stat and ask them for someone who KNOWS about treating neuropathic pain.
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[User Picture]From: dorei
2008-08-02 09:05 pm (UTC)
I'm sorry it's causing you such grief. You can't talk to your primary care physician about pain management for it since your surgeon appears to be so stingy?
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[User Picture]From: starrynytes4me
2008-08-03 02:42 pm (UTC)
I have an appointment on Thursday. He is on vacation until then sadly or I would have seen him already. He is off the grid.
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[User Picture]From: stephanieanne
2008-08-02 10:12 pm (UTC)
So...here is what I think. Your blogs are always articulate with some hilarity thrown in, but also have a good dose of common sense, slaps up the head and life wisdom.

What if you became an advocate for those patients that are treated like drug seekers when they legitimately have pain? Your voice is powerful, and your tone is perfect for getting your message across yet not going on the attack.

People are not aware of your side of the pain control issue- I do believe that it is assumed by most doctors and medical staff that many, if not most, chronic pain patients are abusing the drugs that give them relief (having worked in an office for 8+ years, it seems to be the case).

But you could be that voice of reason for the patient that cannot speak up for themselves as vocally or articulately as you. Pain is real, and it is debilitating on EVERY level- physically, emotionally and mentally (I don't have to tell you that), and it is a doctor's job to "do no harm." I would think that means providing adequate and compassionate pain control. I mean, holding back ULTRAM?? That is not even a narcotic!?!

I was just remembering back to your thoughts on fiscaly fit, and I thought this is another area that you could make a big difference in people's lives?
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[User Picture]From: starrynytes4me
2008-08-03 02:29 pm (UTC)
I really think patients have no power in this area. It is going to take more training in medical school on pain management and time to make a real difference. Raising money to fund studies is how I plan to make a difference here as is getting people to pain specialists and AWAY from untrained and ignorant doctors who have the "tough it out" mentality.

I don't feel patient advocate groups make a difference because as a patient my power is in who I choose to give my money to. Your vote is your doctor choice, and that is very little power.
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[User Picture]From: starrynytes4me
2008-08-03 02:40 pm (UTC)
Also, I do think we have a problem with how doctors consider "abuse", "physically dependent" and "addiction" as the same thing. They are all different with different levels.

For example, I would be considered to "abuse" my drugs because the directions say 1 4x a day. However, I was waking up in the middle of the night. I COULD NOT SLEEP even on tylenol PM with the pain. I took a pill in the night so I could sleep. Now I am a drug abuser? ANY deviation from the directions for any reason at all is considered abuse. But what about the person who has a "bad day" emotionally and takes 3? They ARE abusing their medication if taking it for any reason other than treating pain. I never have fun with my pills. I love having wine. I ENJOY wine, I just don't enjoy taking my pills. I don't get it when people enjoy feeling that way. It's a gross feeling to be over medicated. I only like it more than the physical pain.

Also, it's been 5 years or daily appropriate use. Now, if I run out I feel very awful, ill, cold, with nausea and headaches. Luckily it takes about a day to happen, I don't wake up feeling sick, but that means I'm physically dependent, so if I run out I am sick. This doesn't make me addicted mentally and emotionally. But doctors see this as addicted. IT is KNOWN this will happen with daily use. It is expected as is tolerance. If you give someone this medication daily, it is pretty much a miracle it's taken 5 years for me to end up with both rather than 1 year.

Addiction. There is this thing called pseudoaddiction which means some of the signs they look for, like patients getting agitated, trying hard to get meds, running out early, it can mean the pain is very undertreated. I wish more doctors were aware of this. The only way to tell is to give the patient a short term higher dose and if the behavior ends, it was pseudoaddiction and if it persists, it is addiction, yet doctors aren't willing to consider they may be WRONG in their assumption and that the patient is simply in agony and desperate for pain relief, not for drugs.
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[User Picture]From: graphxgirl
2008-08-04 04:24 pm (UTC)
ugh, I am so sorry.

DO NOT get any more surgery to remove skin, you cannot go through this again.
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[User Picture]From: starrynytes4me
2008-08-04 04:27 pm (UTC)
I will not at least for a year, and never again from this doctor.

There still is a slight arm problem and my breasts have not shrunk evenly in proportion to my body, so I may get a lift one day, but NOT until I feel better and it will be by a doctor who is not like this.
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