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Lanette

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Spinal Swedish Mouse Test [Jun. 11th, 2008|01:47 pm]
Lanette
[Current Mood |surprisedsurprised]

The doctor had to give me the test twice the results were so extreme. The test was easy except they made me bend forward and backwards, making my pain level 8 jump up to level 9 and now I'm shaking and may not make it all day through work.

He said no wonder I'm in so much pain. My lower back barely curves at ALL. It's so messed up that he has to call Sweden and a few spine colleagues to confer about this. He said he would give me another MRI, but it doesn't matter at this point. Treatment would be the same either way as they don't surgically fix this sort of problem.

So, I have to go back in 2 weeks. I'm on double the lidocaine patches and am to wear them daily for a month tracking pain levels. It is very likely I'll start physical therapy soon to try to rebuild up my spine. There is a chance removing the marsupial pouch might help a little, so that is staying on schedule.

Pretty much, it feels good to have validation. Yes, there is a physical reason I'm in terrible pain, having trouble staying up past 8pm, having trouble lifting up my legs, bending over, and even picking up a small suitcase. I'm not overreacting. I'm not lazy. I'm not depressed. I simply have a messed up spine right now.

I'm also going to get myself some acupuncture and massage lined up and re-start the daily meditation instead of "as needed" once I get the "plan" that the doc has put together for me.
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Comments:
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[User Picture]From: starrynytes4me
2008-06-11 08:57 pm (UTC)
He wasn't overly enthusiastic, but he did tell me he is going to do his best to come up with an aggressive plan based on the "new diagnosis" and he said he does not need me to do any further tests. He wants to validate the information, but this is conclusive. We know the cause. In addition to endometriosis, I have a bad spine problem, and now it's time to treat it! I have great hope that we may be able to fix this. What if I could try to have a baby? It's a real possibility to work towards. I could just cry from that thought.
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[User Picture]From: starrynytes4me
2008-06-11 09:44 pm (UTC)
Thank you! I really appreciate it. :)
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[User Picture]From: omcintyre
2008-06-11 09:12 pm (UTC)
Curious.. do you have spinal stenosis or Ankylosing Spondylitis by chance? You pain and spinal issues seem like it could be one of the two. I know there are medications to treat the AS, and there are surgical methods to reduce pain and improve flexability and use of the spine in spinal stenosis.

I hope your pain improves and that your doc can find some answers for you. I'm a big believer in acupuncture (twice a week, baby!) and meditation (couple times a day).. they get me through the icky daily pain.

*gentle hugs*
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[User Picture]From: starrynytes4me
2008-06-11 09:40 pm (UTC)
I don't have the diagnosis or plan yet. He's making it and verifying it with some spine experts. I'll meet with him in 2 weeks time to get more info.
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[User Picture]From: starrynytes4me
2008-06-11 09:44 pm (UTC)
Oh, basically he showed me that my spine is straight at the bottom and it over bends at the top. When I lean forward rather than curving more, it goes in the wrong direction. If I lean back it actually curves the wrong way too. I won't get details for awhile though.
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[User Picture]From: cerridwenskye
2008-06-11 09:17 pm (UTC)
i'm so glad you have more answers now. Hopefully it leads to some treatment that works great.
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[User Picture]From: starrynytes4me
2008-06-11 09:40 pm (UTC)
I hope so too! Even if it just improves somewhat, that will make a big difference to my life.
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From: maphia
2008-06-11 09:28 pm (UTC)
I hope that this new plan can give you some relief.
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[User Picture]From: starrynytes4me
2008-06-11 09:40 pm (UTC)
Me too! It's exciting to even have a bit of new information to work with.
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[User Picture]From: the_new_perfect
2008-06-11 11:17 pm (UTC)
I concur.
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[User Picture]From: christabel
2008-06-11 09:37 pm (UTC)
Well I am not happy that your spine is that jacked up but I am glad that you finally got to the root of your issue and now can start working towards the things that will specifically help rather than just shooting at fish in a barrel hoping you hit something! *hug* I wish I could be there with you today. We could sure use each other.
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[User Picture]From: starrynytes4me
2008-06-11 09:41 pm (UTC)
I so agree. I miss you like crazy my spicy Redheaded strumpet. :)
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[User Picture]From: thought1
2008-06-11 09:58 pm (UTC)
*nod* Spinal problems cause far more quality-of-life issues than most people realize, even people experiencing them. Glad to hear that you've got a viable plan to move forward!!! (:
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[User Picture]From: starrynytes4me
2008-06-11 10:28 pm (UTC)
I look forward to getting started with the physical therapy and getting on with feeling better. Honestly, it's so intense that I'd be most excited if he told me there was surgery that could fix it, but just taking more weight off of the lower back by getting my extra skin removed could help some.
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[User Picture]From: puppie
2008-06-11 11:20 pm (UTC)
That's good news! (in a twisted sort of way)

And I'm glad they doubled your pain patches and stopped treating you like an addict.
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[User Picture]From: starrynytes4me
2008-06-12 12:23 am (UTC)
Well, the pain patches are just lidocaine, so numbing for the muscles, not real pain medication. They can take the pain down 1 level. Unlike the actual pain medication which can knock it down 4 or 5 levels.
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[User Picture]From: puppie
2008-06-12 01:19 am (UTC)
Oh. Shoot. :-(
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[User Picture]From: nadalia
2008-06-12 12:48 am (UTC)
I'm glad you have validation and a plan to hopefully improve things!
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[User Picture]From: starrynytes4me
2008-06-12 12:57 am (UTC)
It's going to be a few weeks of waiting, but it's exciting to know they found something and may be able to help me!
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[User Picture]From: dove
2008-06-13 09:21 pm (UTC)
*hugs you gently* I am here for your massage needs! And wow... spinal stuff is DEFINITELY not for the faint of heart. I am glad you are validated too.
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