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The Best Bad News Ever! [Oct. 15th, 2007|01:24 pm]
[Current Mood |excitedexcited]

I just got back from my doctor where he did a special nerve test on me.

I can NOT be diagnosed with a pain disorder because it is now proven that the nerve consistent with L5 on the right is functioning at 47% as compared with the same nerve on the left. It is showing as a chronic issue also as other nerves have adjusted. Does this mean I have a bad back? Normally yes, but no, the MRI on my back was normal. It can be caused by very bad pelvic pain or a few other things.

Likely this does nothing to change my treatment nor can it be fixed. What it does is give me vindication against all of those who doubted the "realness" of my pain issues. To those who doubted the severity of the problem, and worst of all, to those who refused to believe it was real. We have conclusive scientific proof that I have significant nerve pain from the nerve root of L5. So put that in your pipe and smoke it! I mean,..I knew that years ago because my leg felt like it was entirely full of lava, but it feels nice to have solid proof, finally, after 10 years. I don't have to doubt my own mind, my own sensations of being in pain, or even my own sound judgement. The test he gave me does not test your pain sensations at all, only the nerve function, so the issue is in the nerve itself.

[User Picture]From: mstorijones
2007-10-15 10:26 pm (UTC)
funny how people think they know our bodies better than we do then we get excited when we are told what we already know.....why do we do that to ourselves? I am going through this with my left knee and lower back....guess I need to bite the bullet and go to the doc to have it checked out so I can have a paper that tells me what I already know. :D

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[User Picture]From: starrynytes4me
2007-10-15 10:34 pm (UTC)
I knew it hurt, but so many people were biased and untrusting that I began to have doubts. I mean, I was willing to consider any reason at all after 10 years. I even got tested by a psychiatrist (tested very low for hypocondria), but just to be sure. I did every alternative medicine technique out there and STILL the only thing that worked was treatment for nerve pain. Wouldn't that make it obvious that I had nerve pain? Well, we couldn't be sure until today.

It feels good to have it confirmed and to know for sure. They may not be able to "fix" the problem, but I no longer have to worry about being denied treatment. That is always a fear for me as I had uncontrolled pain for years. It brings up gut level fears when I think about my doctor retiring, thinking I'll be denied medication and unable to work or function at all.
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[User Picture]From: kill
2007-10-16 06:21 am (UTC)
I'm so happy you got proof. I know how important that is.
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[User Picture]From: starrynytes4me
2007-10-16 03:47 pm (UTC)
I felt great to finally know where the pain comes from even if we can't be certain of the cause. We do know it most likely won't grow into pain in the entire body since just the nerves from L5 are affected and it hasn't grown. Because my back itself is ok and my pain receptors are ok, my prognosis is better. It means, yes, I'm in pain. I have to keep taking meds, but I don't have to fear it will spread to my entire body, and my pain is under control enough that I can function really quite well right now.
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